Thursday, January 1, 2009

I’ll kiss it away

[I had tried to publish this on November 25th, when Thomas was three days old, but I could not get Blogger to work. I just found this post saved as a text file on my computer, and thought I would still share it with you. Notice the butterflies lyric...]

Some of you know that I participate in an email "chat" group with people from the town we used to live in. One of the participants is a woman from Austria. She sent me the following YouTube video link and even posted some comments about me. It is interesting how we can touch people across the world so easily via the Internet.

The song is by Sarah Connor, called I'll Kiss It Away. This beautiful song is about Sarah' daughter Summer, who also has a congenital heart defect.

The lyrics are:
Twenty days and Twenty nights I’m sitting right here by your side
Surrounded by the monitors listening to you sigh
You’re sleeping so peacefully, sometimes you’re smiling in your dreams
Lord, why had it to be her, why didn’t you pick me
Until the day you were born, still hoping they were wrong
But now I’m here to make you strong,

I’m with you..
I’ll carry your pain, whenever you fall again
I will help you stand, just reach out your hand
When your world is dark, or you’re hurt in your heart
Come what may, I’ll kiss it away

Come what may, I’ll kiss it away

Sing softly into your ear, your hand is wrapped around my finger
Kiss your eyes, whisper “I am here and this won’t take much longer”
And now we’re having fries, you’re chasing butterflies
And show the world you want to fight, oh yes you do

I’m with you..
I’ll carry your pain, whenever you fall again
I will help you stand, just reach out your hand
When your world is dark, or you’re hurt in your heart
Come what may, I’ll kiss it away

In the darkness of the night I’ll be there to hold you tight
And until my final day, I will guide you, come what may
Come what may…

I’ll carry your pain, whenever you fall again
I will help you stand, just reach out your hand
When your world is dark, or you’re hurt in your heart
Come what may, I’ll kiss it away
Come what may, I’ll kiss it away

Wednesday, December 24, 2008

Santa's visit


On Thursday, December 18, in the morning, Santa Claus came to visit Thomas in the hospital. He left this card with his photograph for us. This is Thomas' last picture. He is surrounded by his little animals, and sucking away on his vanilla pacifer. He looks as sweet as can be, and Santa is a right jolly old elf.

Thank you Santa for visiting Thomas. I'm just sorry he was asleep and couldn't tell you what he wanted most for Christmas.

(Santa came as part of Santa's Gift.)

Monday, December 8, 2008

Thomas' baptism

On Friday, November 28, we were told that a Chaplain at Children's Mercy Hospital could provide us with a Catholic rite of Baptism, if we were interested. They mentioned this since Thomas was going to be undergoing open heart surgery the following Monday. Since we were interested, we called the Chaplain and said we were able to do it right away if she was available.

Baptismal artifactsShe brought up three simple Christening gowns, which were really just front cutouts that one could lay across the top of a baby, without having to worry about tubes and other medical apparatus. We picked one of the three for Thomas to wear.

The Chaplain, Mary Anne, Tim, and I gathered beside Thomas' bassinet, and closed the curtains around his area. Becky, the Chaplain, read a verse from the book of Matthew: "Then little children were brought to Jesus for him to place his hands on them and pray for them. But the disciples rebuked those who brought them. Jesus said, 'Let the little children come to me, and do not hinder them, for the kingdom of heaven belongs to such as these.' "

She took a little seashell which contained holy water and poured a little bit out on Thomas' forehead three times as she said, "I baptize you in the name of the Father, the Son, and the Holy Spirit."

When she was done, she gave us the shell to keep, along with a little gift and a green beaded bracelet with a saints charm on it (Saints Patrick and Bridget). The gift was a small plaque/ornament that showed a little boy praying with a stuffed bunny rabbit (or puppy dog) by his knees, with the phrase "God bless this precious little boy entrusted to our care." She also said we could keep the baptismal gown.

Becky said that the Roman Catholic Church authorizes chaplains to do baptisms like these in special circumstances, and that we can still have a more formal affair later in our church.

Certificate of Baptism

Thursday, November 27, 2008

Happy Thanksgiving!

Our little turkey's first Thanksgiving! May you and your families have as blessed a holiday as Thomas, Tim and I.

Thomas' First Thanksgiving
[Click to enlarge]

Tuesday, November 25, 2008

Thomas' Medical Updates

We have set up a CarePages account for our new son, Thomas Emery Daily. It is a web site supported by the hospital that allows you to update your friends and family with the current medical status of a patient. Thomas' own CarePage can be found at this link: Thomas' CarePage

You will have to register (for free), and it allows you to receive notice by email when an update has been posted. So far, I've just updated Sunday's info, I will be posting an update from yesterday shortly.

Thank you all for your love, support, and prayers. I believe it has made a world of difference in how Thomas is doing. And it means so much to us.

Susan & Tim

Monday, November 24, 2008

Announcing...

Announcing Thomas Emery Daily
We would like to introduce you to our son, Thomas Emery Daily, who was born on Saturday, 22 November 2008, at 2:12 a.m.

Thomas' name came about in interesting ways. Back on September 12th, I had a dream. Mary Anne, Tim's mother, was pushing an old fashioned baby carriage, with Tim walking beside her. They approached me, I believe I was laying in a hospital bed. Mary Anne asked me, "Would you like to meet baby Tom?" I looked up at Tim and said, "That isn't one of our name choices!" [It wasn't.] And he said sheepishly, "It was in the spirit of the moment." Tom is the name of Tim's father.

Then in October, we were at a Halloween party. Other guests were interested in knowing gender, names, due dates, etc. but all we could tell them was that the baby was due to be born on Thanksgiving Day. One of the women said, "You should name your baby Tom, then, if it is a boy." She was referring to a Tom Turkey, but at first I didn't get that. I just was stunned she picked the name Tom. Within two days, a second person also said we should name the baby Tom if it was a boy.

We still did not change our name list, where we had the name Thomas as one of the middle name options. Once, in early November, Tim and I sat at the dinner table and pulled out our name list and went through them again. We were leaning heavily towards the name Nolan Michael for a boy. But nothing seemed exactly right. When people would ask if we had picked a name, yet, I would say we had a list of six boys' and six girls' names, but none were anything we absolutely loved. We just felt we had to meet baby.

The week our son was born, though, I began to think about that name Thomas. At the bottom of our list of names, I scribbled down "Thomas Emery" even though Emery had never been one of our choices, either. (It had been nixed during our initial collaboration.)

So on Saturday morning, when someone in the delivery room announced, "It's a boy!" (I never did see him naked until I was looking at photos that night by myself), we knew the count was on to get him named. After I sent out the first birth announcement, we were soon inundated with name options. Two of them included the name Thomas. The funniest one was "Thomas Brady Daily" suggested by Tim's former boss, Rich, an avid Patriots fan. When Tim told me the name en route to see Thomas at Children's Mercy on Saturday afternoon, I thought, how interesting, he picked the name Thomas. I did not make the connection to the quarterback's name being Tom Brady!

As Tim and I sat alone with our son, I asked, "So what are you thinking of for his name?" Tim told me he had asked our boy what name to call him when he was alone with him in the early morning hours. But that since I "did all the work", I should name him. But I smiled and said, "No, he is our son. Let's decide together." And he said he liked the name Thomas. We had not talked yet about naming him that, so it was a very good moment. I told Tim that I agreed, and our son had a first name.

The middle name was a little trickier. I told Tim I really liked a family name, Emery, but that I also was debating using the name Edmund. We had really wanted to use Michael, but that just didn't seem to go, now. A fourth choice we tossed around was Murphy. So two Ms and two Es (T.M.D. or T.E.D.). So I said to Tim that I would call my brother Paul that night and find out how he felt about his middle name, which is Emery.

Kate (Emery) StevensPaul told me that while growing up, he didn't like it, especially since he didn't even know "who" Emery was! But that he had grown used to it now. When I told him the choices, he said he liked the flow of Thomas Emery better than Thomas Edmund, even though he thought Edmund had a more tangible link to our family. (Edmund is my father's father's name.) Our first link into the Emery family, which settled in America in 1635, is my father's great grandmother, "Grammy Kate", or Katherine Imogene (Emery) Stevens (photo taken c. 1925). My dad's mother Olive had a brother named Clayton Emery Buck, we knew him as "Uncle Clayt" growing up. Olive then chose the name Emery for the middle name of her son, my father's brother, David Emery Cullivan. My dad continued the tradition and named his eldest son Paul Emery, this is my brother. There is a free downloadable copy of the Emery genealogical history online at Google Books: Genealogical Records of Descendants of John and Anthony Emery, of Newbury, Mass. 1590-1890.

Tom Daily 1909The name Thomas might seem to point most obviously to Tim's father, Thomas. But since I am a genealogist, what I find really neat about it is that Thomas is the name of the father of the first Daily immigrant to America, Peter Daily, who arrived in Boston, MA about 1835. A verbal history by one of Peter's granddaughters stated the following: "Peter Dailey was born in County Longford, Ireland, in the year 1804. He was the son of Thomas Dailey, who was a schoolteacher, and his second wife, name unknown. Thomas Dailey and his first wife had five sons and they were grown men when Thomas remarried after the death of his first wife. Peter was their only son and Thomas died when Peter was two years old." Peter's son John named one of his twin sons Thomas. Tim's father, Tom, was named for this man, his grandfather (see photo, taken in Indiana in 1909). The name Thomas means "twin" in Greek. Our little Thomas could have been a twin also, as he was one of two embryos that we transferred back in March. I like that little twist to the meaning behind his name, too. So Tom's grandson was named for him, just as he had been named for his grandfather. Another cute little fact is that our baby son now has both of my brothers' middle names! (My brother Brian is named Brian Thomas.)

Sorry for the long dissertation on his name, but as a genealogist, I couldn't resist!

Saturday, November 22, 2008

Our baby boy was born today!

Clean baby after birthI gave birth to our baby boy at 2:12 this morning, November 22, after more than 24 hours of labor. Baby was 7 lbs. 11 oz, 21.5" long, with a full head of hair! He was rated with an impressive APGAR score of 9. (The neonatologist was impressed. He said, "we don't give those away.") He has a nice round face, good reflexes, a hefty cry, very long fingers and toes, and large feet. We have not named the baby yet, but plan to do so by tomorrow (Sunday).

[Remember to click on each picture to see a larger version.]

Here is a picture of Susan holding the baby for the first time:
Mom holding baby
Here is a picture of baby in the NICU bassinet, showing his long feet:
Baby's long feet

Baby was prepared for transport to the children's hospital within two hours in this bassinet:
Baby in transport bassinet

The transport team brought baby to mom's room for her to hold. Here they are joined by daddy Tim and grandma Mary Anne:
Baby with mom, dad and grandma
After Susan was brought to the Mother/Baby unit and her new room, Tim left for the children's hospital to be with baby. This was about 6 a.m. At the new hospital NICU, Tim took this pic of baby in his bassinet:
Baby at Childrens Mercy NICU
After a long day with many phone calls, Tim and Mary Anne returned to the birthing hospital to pick up Susan and return to the children's hospital to visit with baby. Here is Susan holding the baby on her lap around 6 p.m., still on his birthday:
Baby on mom's lap
I'll post a full report at a later time, but wanted to get these pictures out to share with all our friends and family.